Cuddington | Buckinghamshire

The Finley Newell Mobility & Equipment Fund

Finley Newell is the grandson of Liz and Steve Davies of Bridgeway, Cuddington.  Many of you will know Rosie, his Mum, and will have watched her growing up in the village.

At 13 months, Finley was diagnosed with Spinal Muscular Atrophy (SMA) Type 2, a progressive neuromuscular disease.  Finley will never crawl or walk and cannot stand.  There is weakness in his arms, hands, head and neck.  He is unable to swallow and his respiratory muscles are also affected leaving him vulnerable to serious chest infections resulting in emergency hospital admissions.

But for all this, he is a bright and happy 5-year-old with a huge zest for life who drives himself to mainstream school in his powered wheelchair.

Living in Haddenham, he and his family try to live as normally as possible, but this cannot be done without specialised equipment and therapies beyond the realms of the NHS.  It is for this reason that the Finley Newell Mobility & Equipment Fund was set up to fund ongoing equipment, therapy and mobility costs.  

From time to time, fundraising events are held.

If you would like to know more about SMA, visit www.smasupportuk.org.uk, a national charity supporting and empowering those affected by Spinal Muscular Atrophy.

More information about Finley can be found on Finley’s Facebook page, here.

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ContactNews

Liz Davies
t: 01844 299 150